Canuck Place Children’s Hospice (CPCH) in support of Statistics Canada’s Living with a Life-Limiting Illness – Access to Care and Related Experiences (LLLI-ACRE) project, would like to invite our families share your thoughts in their most recent survey regarding care for people a life-limiting illness with and caregivers experiences.

Statistics Canada recognizes that patients, clients, and their caregivers’ collaboration is crucial, because it will allow them to reach people who otherwise may not hear about this study on palliative care. Our goal in sharing this study is to encourage family participation to ensure the information is as accurate and complete as possible.

The data provided by participants will be used to help healthcare organizations and providers improve the development, planning and delivery of high-quality care for those living with a life-limiting illness and their unpaid caregivers in Canada.

Goals of the study:

  • To better understand the lived experience and care of individuals with life-limiting illnesses and their caregivers, including access to care and support services
  • To ensure the results of this national study will offer insights into the care experiences of Canadians living with life-limiting illnesses
  • To recognize barriers to receiving palliative care and identify any gaps that should be addressed
  • Help healthcare organizations and providers understand how our healthcare systems are or aren’t meeting the individual and unique physical, psychological, social and spiritual needs of Canadians with serious illnesses

provide your feedback

All information collected by Statistics Canada as part of the LLLI-ACRE will be protected under the Statistics Act.

Canuck Place nurse with Canuck Place child in a powerchair

Family Engagement at CPCH

Children and family are at the centre of the care provided at CPCH. We respond to the voices of our patients and families, and collaborate on improving care by working directly with families. Partnering with families and acknowledging their living and lived experiences are vital and valuable components to improving our program services. The vision for the framework is to ensure consistent, safe, and respectful engagement with children, youth, and families at CPCH, to fully represent the diverse perspectives and promote continual improvement of pediatric palliative care and services.